Carer support
A diagnosis of frontotemporal dementia (FTD) may initiate a number of questions and concerns for people with the diagnosis and their family and friends. There are many people available to assist you to find information (regarding the disease and practical issues) and adjust to the diagnosis.
FTD presents in two ways (a behavioural variant and a language variant). Therefore symptoms vary for different people. We have provided some practical hints regarding some of these symptoms under the link behavioural symptoms and practical problems in everyday life on the left handside. Remember that we are all individuals and these suggestions are general. If you need more assistance please contact one of the associations close to you.
We think that meeting with other carers can also be very helpful. We have specific FTD carer’s meetings which are held regularly. The date of the next meeting can be found on the homepage under Events, alternatively click here.
It is important for you to look after yourself if you are a carer and to have the support you need to do this. This will help you to provide the best care for the person with FTD as well as maintaining your physical and psychological health.
In addition we have written a free booklet on Younger Onset Dementia in association with Alzheimer Australia, which you can download from the link below. The Alzheimer Australia website has also a subsection on Younger Onset Dementia with plenty information.
Younger Onset Dementia: A practical guide
Alzheimer Australia – Younger Onset Dementia
