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  • What is Frontotemporal dementia (FTD)?
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Websites for carers

This page lists relevant websites which give more information on FTD and carer services.

(Please be aware that some of the websites are overseas (US, UK) and therefore some of the services described might differ from Australia)


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Frontotemporal Dementia:

  • Association for Frontotemporal Dementias (US) (click here for newsletters)
  • Pick’s Disease Support Group (UK)
  • Frontotemporal Dementia by Alzheimer’s Society UK (UK)
  • Frontotemporal Dementia at UCSF (US)
  • Frontotemporal Dementia Caregiver Support (US)
  • Speakability – Aphasia Charity (UK)
  • Australian Aphasia Association

Dementia Associations:

  • Younger Onset Dementia: Alzheimer’s Australia
  • Health Services – New South Wales Government

Carers’ Associations & Information:

  • Information for Caregivers – Alzheimer’s Australia
  • Caring for someone – Australian Government
  • Commonwealth Carelink Centres
  • Carers’ Allowance – Centrelink
  • Carers’ Australia
  • Carers’ New South Wales
  • Guardianship Tribunal – New South Wales

Websites by carers’:

  • FTD support forum (worldwide FTD carer forum)
  • Early Onset Dementia
  • International PPA (Primary Progessive Aphasia) Connection (IMPPACT)

Neuroscience Research Australia University of New South Wales

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